Advocacy & Resources for Families
Advocacy & Resources for Families and Students with disabilities
Source: (Oakes, 2015)
American College of Education (ACE)(2019) states that advocacy for the needs of students with disabilities involves the partnership of parents, caregivers, and school stakeholders. Parents advocate for their children by being informed of the disability, aware of information from medical providers, teachers, specialists, connected with other parents and understand their rights. Moreover, school stakeholders can support advocacy by communicating with parents effectively, consistently and provide them with useful resources that can be used to assist their children's needs. Teachers can also provide assistance to parents and caregivers by assembling organized folders with documents reflecting vital student academic records and special education services.
10 available resources to support parents and their children with disabilities in special education settings and at home
Department of Public Instruction (2016) provides parents the Parent's Rights Handbook revealing their rights and responsibilities in the special education process. This handbook also reveals the thirteen special education rights afforded to parents. Furthermore, parents would be provided this handbook once a year during the following events: when a student is referred for evaluation, when a student receives a change of placement due to disciplinary reasons, during a due process hearing, when a parent requests a copy of the document, or when the handbook is updated.2. Do2Learn
Do2Learn (2021) provides an online resource with numerous tools such as learning songs and games, free pages with behavioral regulation activities and social skills, communication cards, transition guides for life and employment skills, and academic material. This online website further provides sections about disability definitions, information about the evaluation and eligibility process, characteristics, and strategies for the following disabilities: ADD, ASD, DD, ED, FASD, ID, SLD, SLI, TBI, and 2e.
Learning Disabilities Association (n.d.), provides an online website that reveals interventions and strategies teachers can successfully teach students with learning disabilities. Teachers can benefit from effective interventions mentioned on this site, such as learning strategy instruction, direct instruction, and a sequential or simultaneous structured multi-sensory approach.
Positive Action (2021) provides an evidence-based program designed to guarantee skill acquisition for K-12 students with disabilities in core subjects such as reading, math, grammar, writing, social studies, and science. Positive Action works with students with the following disabilities: AU, ADD/ADHD, Down Syndrome, Emotional Disturbance, Dyslexia, ID, Physical disabilities, and LD. Positive Action also provides kits that include sample lessons that can be used at school and for homeschooling.
The Autism Society of North Carolina (2014) online resource provides home strategies for parents to incorporate with their children with disabilities at home. Some methods include practicing routines, creating a consistent evening schedule, labeling drawers, bins, and cabinets, informing the child of timed activities, visual reminders by the door, consistently interacting with the child, regular movement, and exercise visual supports where necessary. Also, this online website mentions fun activities to encourage social interactions and communication, such as bubbles, peek-a-boo, hide-and-seek, beads, puppet show, and dance party.
The National Center for Learning Disabilities (2011) provides an online document for parents a thorough explanation about the process of Response to Intervention (RTI) and an explanation of the importance of teachers and parents working together o address the struggling needs of a child and support for their success after graduation. Additionally, this online document provides an example of how a school ensures that parents are involved in the RTI implementation process and the importance of RTI in the special education process.
Intervention Central (n.d.) provides an online resource that provides teachers, schools, and districts access to free resources to address the needs of struggling students when implementing RTI. This website offers academic and behavior interventions and workshops for teachers to participate in professional development on many topics addressing academics, behavioral issues in the classroom, using data for progress monitoring, and student motivation.
BAYADA Home Health Care (2014) provides an online website that offers a thorough list and description of support groups for children with special needs parents. The groups include Mommies of Miracles, 5 Minutes for Special Needs, Different Dream, The Global Tracheostomy Collaborative, The Arc, Nancy's House, The Caregiver Action Network, and Complex Child E-Magazine. The Arc, for example, is an advocacy organization to promote and protect the rights of individuals with intellectual and developmental disabilities and support their participation and inclusion in the community.
This Resource Guide for Parents and Families (2015) is a user-friendly guide for parents and families of children with special health care needs, school social workers, school counselors, principals, teachers, EC coordinators, and other staff. This guide offers essential health information on state and local resources available. Some of the health insurance and financial benefits options the document list and describes Medicaid, Affordable Care Act, NC Health Choice, Private Providers, and Supplemental Security Income (SSI) for Children.10. PBIS World
PBIS World.com (2013) is an online resource that offers teachers Positive Behavioral Interventions and Supports (PBIS) strategies and data tracking for each tier. This resource also provides a forum for teachers to discuss their experiences and practical strategies they have tried.
PBIS at home (2013) is another online document about reinforcing PBIS at home. This online document is for parents to develop and sustain a structured, safe, and consistent home environment that fosters the relationship between parent and child. Parents use this document to teach their children life skills and positive behaviors. The online document reveals and explains the steps for parents to follow when using this document, such as defining routines for the behavior, modeling and educating the behavior, practicing the behavior, reinforcing the success of the positive behavior, redirecting undesirable behavior, and responding to behavior.
ADHD Resources chart for Parents
This parent resources chart outlines a list of resources, ways to access information and a description of what each resource entails.
Resource | Ways to Access | Description |
American Academy of Pediatrics Healthy Children | Website: www.healthychildren.org | Information for parents, caregivers and healthcare professionals addressing parenting issues, safety, and various health issues |
Kids First Pediatrics | Book an Appointment online Or Call (910)848-5437 | ADHD Testing & Treatment |
School Psychologist | Email Lynn K. Makor Website: School Psychologist Website | School Psychology Services |
Bilingual Clinical Social Work/Therapist | Call or Email Kathyeli Rivera | Specializes in ADHD and provides Cognitive Behavioral Therapy (CBT) for families |
Tutor doctor | Contact for free consultation (888)718-8832
| In home and online tutoring services for elementary students |
CHADD-Homework Help | Homework Help tips for ADHD | |
Triple P | Register on the website: | Free online parenting program course for parents to support their child with ADHD
|
Kristin Redington Bennett ADHD Parenting Group | Call Dr. Kristin Bennett’s Group: (336)221-3730 Or Email: Kristin Redington Bennett | ADHD Parenting Group that meets for 8 weeks to uncover parenting patterns, practice strategies, and share successes and struggles. |
Children and Adults with ADHD-CHADD | ADHD-related resources, training, events and research for caregivers, educators, healthcare professionals and policy makers | |
Parents Med Guide | Reliable information for caregivers and children with ADHD pharmacologic treatment |
Pre-Employment Transition Services resources for youth with disabilities to prepare them for life after high school
Vocational Rehabilitation provides more intensive case management services to help students with disabilities explore career options, develop goals for their future and overcome challenges they may face along the way (NCDHHS, 2020).
Service Source (2020) is a program that is designed to provide in-school youth with disabilities, industry-based career exploration; helps students with disabilities learn skills to assist them with the transition from school to the workplace, and aligns local employers with students to engage in hands on employment exploration and job skill development through intensive paid internships in the community. In addition, students earn a way while interning through local companies.
Work Source East provides vocational training to teach work adjustments domains of: environmental services, Welding, Automotive services, Childcare, Food Services, Carpentry & light construction, personal care aide, brick masonry, grounds maintenance, and printing. Work Source East also provides a 24-hour assisted living service near the Work Source East facility at Magnolia Place (Alexis & Megan, 2013).
Eligibility for Pre-Employment Transition Services
|
Vocational Rehabilitation Services: Youth and Student Services (NCDHHS, 2020) |
Work Source East post-secondary facility (Megan & Alexis, 2013) |
Service Source Pre-Employment Transitional Services (ServiceSource, 2020) |
|
Be between the ages of 14-21 |
Qualify for Vocational Rehabilitation services |
Have a documented disability |
|
Should be eligible for special-education – related services
under IDEA or considered an individual with a disability under Section 504 |
Be at least 16 years old (18 for residential
services). |
Be between 14-21 years old |
|
Already enrolled in traditional/alternative or
post-secondary program |
Possess self-care skills or have personal care attendant |
Enrolled in a CCS school |
|
Have a school referral and signed consent form |
Be able to self-administer and maintain medications |
|
Costs associated with the pre-employment transition services
Pre-Employment Transition Services like Vocational Rehabilitation (DVRS), Work Source East, and Service Source, are at no cost to young adults eligible for special-education related services (NCDHHS, 2020).
References
AmericanAcademyofPediatrics. (2020). The AAP Parenting Website. https://www.healthychildren.org/English/Pages/default.aspx
American College of Education (ACE) (2019). Advocacy for Students with Disabilities and Their Families: Advocacy in Special Education [PDF].file:///C:/Users/jayb8/Downloads/Advocacy%20in%20Special%20Education%20(2).pdf
Autism Society of North Carolina. (2014). Simple Home Strategies for Parents.https://www.autismsociety-nc.org/simple- home-strategies-for-parents/
BAYADA Home Health care. (2014). Support Groups for Parents of Children with Special Needs. https://blog.bayada.com/be-healthy/eight-support-groups-for-parents-raising-children-with-special-needs
CHADD. (2020). Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD).https://chadd.org/
CHADD. (2020). Homework Help for ADHD. https://chadd.org/for-parents/homework-help-for-adhd/
Chammas, M. (2017). The benefits of Using Cases in Teaching. Halmstad University.https://www.diva-portal.org/smash/get/diva2:1062108/FULLTEXT01.pdf
Department of Public Instruction. (2016). Parents Rights & Responsibilities In Special Education [PDF]. https://www.dpi.nc.gov/media/11182/download?attachment
Do2Learn. (2021). A resource for individuals with special needs. https://do2learn.com/
Eicher, S. (2018). Supporting Parents of Students with Special Needs.https://www.edutopia.org/article/supporting-parents-students-special-needs
InterventionCentral (n.d.). Response to Intervention-RTI Resources.https://www.interventioncentral.org/home
KidsFirstPediatrics. (2020). ADHD Testing & Treatment.https://www.kidsfirstpedsraeford.com/pediatric-services/adhd-in-children/
Learning Disabilities Association of America (LDA). (n.d.). Successful Strategies for Teaching Students with Learning Disabilities. https://ldaamerica.org/info/successful-strategies-for-teaching-students-with-learning-disabilities/
Megan & Alexis. (2013). Work Source East. https://worksourceeast.weebly.com/
NCDHHS. (2020). Employment Services for People with Disabilities.https://www.ncdhhs.gov/assistance/disability-services/employment-services-for-people-with-disabilities
National Center for Learning Disabilities. (2011). A Parent's Guide to Response to Intervention (RTI) PDF]. https://www.advocacyinstitute.org/resources/ParentRTIGuide.pdf
Oakes, A. (2015). Family-School Partnerships:9 Beliefs and Attitudes for Success [Image].
https://www.studentachievement.org/9-beliefs-and-attitudes-that-foster-collaborative-family-school-partnerships/
PBISWorld.com. (2013). Helping parents help their kids. http://www.parentsmedguide.org/
PBIS World.com (2021). PBIS. https://www.pbisworld.com/
PBIS at Home. (2013) PBIS at Home [PDF]. https://www.iidc.indiana.edu/cell/resources/PBIS-at-HOME-Binder.pdf
Positive Action. (2021). Special Education Curriculum.https://www.positiveaction.net/special-education-curriculum
Psychology Today. (2020). Kathyeli Rivera Clinical Social Work/Therapist.https://www.psychologytoday.com/us/therapists/adhd/nc/fayetteville/468100?sid=5fd56d33c3247&ref=1&tr=ResultsName
Psychology Today. (2020). Kristin Redington Bennett.https://www.psychologytoday.com/us/therapists/kristin-redington-bennett-winston-salem-nc/440651
Public Schools of North Carolina. (2020). School Psychology.https://ec.ncpublicschools.gov/instructional-resources/school-psychology
Resource a Guide for Parents and Families of Children with Special Health Care Needs in North Carolina: Disabilities, Special Education, and Statewide Resources. (2015).[PDF].https://www.cidd.unc.edu/docs/lend/ResourceGuideforParentsandFamiliesofChildrenwithSpecialHealthCareNeedsinNorthCarolina.pdf
SERC. (2018). Pedagogy
in Action: Why Teach with the Case method?https://serc.carleton.edu/sp/library/cases/why.html
Service Source. (2020). Youth Transition Services.https://www.servicesource.org/service/youth-transition-services/
Triple P. (n.d.). The Positive Parenting Online Program. https://www.triplep-parenting.com/nc-en/find-help/triple-p-online/
Comments
Post a Comment